On my wish list as a kid was to fly in a hot air balloon.  I've been bungee jumping, skydiving, and piloted an ultralight plane, but no hot air balloon yet!
Maybe one day these two kiddos will join me. For now, though, I'll have to be content with making up Doodles and Stories for them about high flying adventures.

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Doodles of a perfect late summer day at the cottage.

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A joint project by Clara and I. Somehow her finishing touches totally complement the feel of the drawing.

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Back to school is on Tuesday and my little man is entering Senior Kindergarten.  I could use a lot more lazy summer days, and to tell the truth, I'm sending him off with a trepid heart.  I'd like to wrap him in bubble wrap and keep him safe from all the challenges, both emotional and physical, that school can offer.  But, I'll keep a brave face, trust that he'll find his way, and focus on pinning cool back to school lunch ideas.

 

 

 

Coloured line drawing of man and woman embracing
William saw this drawing and asked if it was Mom and Dad on their wedding day, which I thought was sweet.

I'm working on a little comic.  If the stars align, I'm hoping to finish it by midweek.

Comic of Mother being pleasantly surprised with a gift of her children for Mothers Day

This Mother's Day, I asked my hubby for a little bit of time to myself. I love my kids, but when Motherhood is a full time job, the occasional break is nice.  So, my wonderful husband took the kids to his parent's house for the night and part of today to give me a Mother's Day break. But all last night, I couldn't help but think about my babies, so I quickly did this comic. I loved sleeping in until noon (NOON!) today, and I can't wait to see my babies 🙂

For the first time in as long as I can remember, I am listening to a song on repeat, again and again.  I love this song!  Precious Love by James Morrison.  Here's a great video version, Live at Lightning 100 Studio.

ps. Check out the last scene in Schitt's Creek season final "Happy Anniversary" to see Eugene Levy "Raising the Roof" to this song.  It will make your day!

 

 

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I am finally working on a new comic. Happy Spring Everyone!

 

Simple Watercolour drawing of  childen on a rollercoaster

I came across this little drawing while I was sorting through some old pictures.  I had made it for my nephew's 3rd birthday.   He was enthralled with "Lollicoasters" at the time.  Now that little 3 year old is a big kid and likes Minecraft and Soccer.

 

 

 

 

Rare Disease Awareness emblem for Clara and M-CM Syndrome

Today is Rare Disease Day, which is a day meant to spread awareness about rare diseases.  My daughter Clara has M-CM (aka MCAP) Syndrome, which stands for Megalencephaly Capillary Malformation Syndrome. M-CM is very, very rare, and not a lot is understood about the syndrome.  There are only around 200 people diagnosed with it worldwide.  M-CM causes body and head overgrowth and abnormalities of the skin, vascular system, brain and limbs.  We know that M-CM is a spectrum, so some children have only a few issues and some children are affected with more serious neurological symptoms, delays, and/or health problems. The children we've met online are beautiful, brave, and very strong.

M-CM is the reason for most of the health concerns Clara has had in her young life, such as: her heart conditions (PDA, ASD, Enlarged Heart, and Fetal Atrial Flutter), Pulmonary Hypertension, Macrocephaly, and her gross motor and speech delays. We have been very lucky that most of her issues are fixeable, maneagable, and/or mild so far.  We feel incredibly blessed to be followed by a number of medical experts at Sick Kids hospital, as well as Early Intervention, who all care so much about Clara.

As for Clara's future, we think it will likely take her longer to walk and talk, and she may have some ongoing health issues, she may even have some delays, but we feel that her future is still bright. She doesn't let anything stop her so far. We are so proud of Clara and love her with all our hearts!

Here are some links with more information:

M-CM Network - Some of the other online info about the syndrome is out of date and/or innacurate.  M-CM.net is run by Christy Collins, an M-CM Mom and advocate. M-CM.net provides the most accurate and up to date info about M-CM.

Rare Disease Day - is an initiative to raise awareness about all types of rare diseases (not just M-CM.)It

If you want to know more about M-CM Syndrome, feel free to contact me!

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